Former Chief Justice Chandrachud is in the headlines for vacating the government house. After this, he cited the illness of both his daughters behind not being able to vacate the government house. Let us know what disease the former CJI daughters are struggling with and how dangerous they are? & Nbsp;
Which disease is struggling with former CJI daughters?
Priyanka and Mahi, two daughters of former Chief Justice of India (CJI) Justice DY Chandrachud and Mahi are suffering from Nemaline Myopathy. This was revealed by Justice Chandrachud himself in a National Workshop recently. Let us know that Nemaline Myopathy Rare is a genetic disorder, which is also known as Rod Body Disease or Rod Body Myopathy. It is a congenital disorder related to the muscles, which affects the scaltal muscles. In this disease, thread -like structures (nemaline bodies) are formed in muscle fibers, which obstruct the normal function of the muscles. This condition causes muscle weakness, lack of walking and breathing problems in many cases. This disease is so rare that it affects one person in thousands.
How is the condition of Justice Chandrachud’s daughters?
Justice Chandrachud told that his daughters Priyanka and Mahi need medical treatment due to this disease. Priyanka’s condition is more serious, as she is dependent on the tracheostomy tube. Special precautions have to be taken to protect them from dust, allergies and infections. For his care, a setup like ICU has been made in the government residence in Delhi, Justice Chandrachud.
How are the symptoms of nemaline myopathy?
- muscle weakness: A person affected may have difficulty in walking, getting up or catching objects.
- respiratory problems: there is difficulty in breathing due to muscle weakness. Especially at night, this problem increases more.
- face muscle weakness: This can make the face look emotionless. Apart from this, it can be difficult to speak and swallow.
- threat of infection: Many patients like Priyanka are repeatedly infected, because their physical condition makes them weak.
how dangerous this disease is?
The biggest danger of this disease is that no definite treatment is yet available. Serious patients like Priyanka may need wheelchair or special medical equipment all the time. If treatment is not found on time, breath related problems can make this disease fatal.
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